Week 20-part 2

Monday
We were busy over here! We settled into our green cocktail and played, sang, slept our day away. A few Marines visited with toys for Christmas. G was sleeping but Alana knows our boy and handed a Thomas video projector gift set off to me. I made sure to make my way to the hallway to thank those daring men for all they do for our country. They deserved hugs!

He ate a bit throughout the day. Bites of pears, breading off of fish sticks and a bribery of Pediasure. By 10 pm the cocktail was done and his first methotrexate draw was taken. I received those results at 4 am today (Tuesday) it was at 90.35. As long as it is under 150 we are sailing well.

We are back to fighting that pee pee monster again, though. Anytime he is sleeping he does not pee. There were a few times I had to actually wake him and make him stand up or walk a bit in our room to make him pee (1 am and 4 am). They need their parameters to chart and we need that metho out of him. It made for a crabby time for me. But he has REALLY been napping and he makes up for it then. Surprisingly, he was able to go right back to sleep after any interruptions.

Tuesday
We woke at 8:30 am. He has been so chill and in such a good mood (no ants in his pants) that I have been able to take a shower in those first 10 min of his wake while he watches tv. Then I order our breakfast and we cuddle. He ate a bit of french toast sticks and pears.

By 9 am we had visitors from the local fire department. They came in and took pics with G and gave him a B.O.B stuffed animal and a set of hotwheels (more to add to our car wash later).
I hugged them as well to thank them for all they do. Heroes all around us if we just take the time to pause and look around. They are standing right next to us at times.

Then at 10 am we had a special visit from an author. His name was Howard and he just wrote a Christmas book that is about to be published. He was making his rounds to read it to children. It is a book about a Santa without a beard. Very cute story! He had his wife with him and they are the most adorable couple. Bragging about their grand and great grandchildren. He was definitely a "Gramps" while he read the book with such enthusiasm.

After they left we read a few books brought to us by volunteers and munched on some Gingerbread house. We have not received the results of the viral swab or the the most recent methotrexate draw. But, now it is def time for his nap. Maybe me, too?