Our own lil superhero!

Our own lil superhero!
Dick Grayson ain't got nothin' on the G-man. Our lil fighter since in utero-a young, fiesty fireball...never giving up! Just watch me!

Sunday, September 18, 2011

Blessings, Hopes & Wishes

Seven years ago today, September 18th, I married the most wonderful man! SEVEN years of marriage! SEVENTEEN years of being together! We are pretty damn amazing, babe!

I could go on and on about what we have accomplished, the good and the bad,  in 17 yrs but the five most important things are these:
1. Us-we hold each other up and will continue to do so
2. Triston
3. Grayson
4. Caden
5. Leukemia

It baffles me to think that in 17 yrs the most life-altering events occurred in the past 400 days or so. The list seems endless at times. My previous posts describe them in detail. But here we are. Doing what we do best. Being us. Continuing to push forward.



And in tow are our 3 amazing boys.

Without a doubt Grayson's leukemia diagnosis has been the most heart-wrenching. Any moment of any day can bring back to that one sentence as my 22 mos old goofed around with his 4 yr old bro in the background and my 5 day old was just happy to see the world in all it's beauty.  The lives we knew were altered forever. The memories we imagined for our kids on our wedding day shattered. But by accepting that we needed to build a new kind of life for our family of 5, a new normal, and keep the love, hope and prayers full we are able to be standing right where we are today. It may be our anniversary to celebrate but I acknowledge so much more. Another morning with my boys. To cuddle, hug and kiss as many times as I want in one hours time. I am blessed to have them all here, EVERYDAY.

A gentle reminder of the EVERYDAY was given to me today. It was too appropriate, considering how blah I have been recently. One year ago today baby boy Ewan entered our world. Less than 17 days later he was taken from this earth. Today his mama celebrates his first birthday, but only through memories and pictures. She cannot hold him, kiss him, or help him blow out his candle. That emptiness is always there for her. So much pain. I have followed her story since he was a few days old. She is an amazing writer and mother. So brave and inspirational. She put together a wonderful slide show in his honor. Here it is:

http://www.team-ewan.com/2011/09/tribute-for-ewan-on-his-first-birthday.html

Happy birthday Ewan! Your baby sister Austen will be here soon. Oh the stories your mom and dad have to share with her of your courage and strength.

As you can imagine, that slide show puts so much into perspective. I cannot imagine this earth without my boys. I will fight my hardest for a happy ending to our story (not that Kirsten and James did not fight day in and day out). I will fight right alongside my hubby forever and ever. Happy Anniversary, babe. Happy "tons of cuddles day" Triston, Grayson and Caden. Here's to a day of holding close what we have and being blessed to have it EVERYDAY. I hope for so many more to come our way. And I wish for those who are hurting to feel the love they know exists around them all day, everyday.

p.s. As for our anniversary day plans-tons of laziness, no cooking and the kids will most definitely be sleeping with us tonight!

Friday, September 9, 2011

Grateful

Remember a while back when I mentioned the upcoming Eric and Kathy radiothon for Childrens Memorial, and how I just didnt thinkI would be able to listen this year? I am here to report I was sucked in.

I started the car this morning and was immediately grasped by the story airing right then. If I had remembered it was airing today I would not have turned the radio on. . It was the tail end of the narrative about a little boy named Jack (have always loved that name). I listened in on the happy voices portraying how well he is doing today. A little guy diagnosed with leukemia at age 2. Now he is 6 and playing his first soccer game tomorrow. As the next story began I sobbed.

I KNOW we are in for a happy ending. I truly know that deep down. But listening this morning set my mood deeper. It was not until I contacted Charito that I was able to calm down. I cried on the way to work and then had to leave my classroom minutes before the kids walked in to cry some more. I just had to hear Grayson's voice, Triston's voice and Caden's laughter.

The intial sobs came from that place of disbelief I rarely need to visit. This is us. We are one of these families. My body truly ached just thinking about it. I flashed back to that parking lot and a 6 mos old Triston.  It set my tone for the whole day. I tried not to let it but there was no controlling it. As I said in recent posts, I am already feeling disconnected, detached from myself and where and what I should be doing lately. Depression? Rut? Simple mood shift? And as was said many times over the cast today, you never think it is going to be you. Your family. Your darkest fears.  Your time to dig deeper than you ever have to find the faith and courage to move forward. No parent should have to go there.

But as the day ends I know now I was meant to listen and I still am as I write this. It is on in the living room as the older boys play in the basement. Once I was able to contact Charito he filled me in on the rest of that beautiful boy Jack's story. He told me his family created a necklace consisting of beads that stood for any procedure Jack had to endure. This necklace was filled with beads. To compare that to what G has been through thus far put things into perspective. A perspective I am very much aware of almost all of the time but these past few weeks been ignorant of, perhaps. We are lucky. Grayson is lucky. He is doing phenomenally well all things considered. And he will continue to. I am sure there were plenty of families that had to share stories of loss on the cast today. That is not us. I am so grateful to have what I have. Sometimes no matter how hard a beautiful, innocent child fought, the illness conquered. The disease left that mommy and daddy's arms empty.

I needed that reminder today. A coworker approached me near the end of the work day, told me she intended to catch me earlier, and gave me a hug bc I had been on her mind since she listened to the cast this morning. I welcomed that hug. I was reminded that we have so many people who care, worry, pray and push right along with us. So, thank you all. I will continue to pray for those families I am hearing about right now and those I will continue to meet along our cancer path. They are suffering and fighting like us and hope to be pain free one day.All of you out there help me each day and I appreciate you and your presence in our lives. I wish you  a blessed, safe, and healthy weekend. Hug your loved ones extra tight ( I sure did as I arrived home and heard my Grayson repeat his daily phrase, "thank you for coming home, mommy. Thank you for bringing Tiston!") tonight and know that I am thinking of you, too.

Now back to the radiothon (it's addictive ain't it? ) and dinner plans (and laundry, dishes...you know the mommy rest!)

Thursday, September 8, 2011

Sept clinic visit part 2

It has been more than 24 hours since our clinic visit and things have flown by at race-care pace that it is worth an update.

I forgot to mention that due to an increase in Grayson's height and weight they increased one of his oral chemo drugs a tad bit (Mercaptopurine by an additional 1/2 tablet per week). So on a weekday in which he typically took half a dose he will consume a whole tablet instead.

G was in a great mood all the remainder of yesterday. He woke in a great mood considering we all slept like crap. My best sleeper in the world child, Caden, has had some rough nights recently. He kept waking all of us last night w the every hour on the hour irritability and congestion and who the hell knows what else. Still figuring out if this is teething or cold. Either way it was a night with all 5 of us in one bed attempting to sleep. Guess who slept the worst? Not too hard to figure out huh?

Both Caden and G wore those great moods all day even w out one ounce of a nap. They did not nap until I tested my already exhausted mommy abilities and headed to Dicks Sporting Goods, Payless and Babiesrus after school. I figured as long as I had loaded C n G in the car to pickup of T (fearing rain if I had walked) I may as well get the errands done. T needed soccer gear for his team photo on Saturday, G and C needed shoes (which makes me mad bc I noticed G's gym shoes are too small 5 1/2s and I have 2 brand new pairs 7s from my mom upstairs and he is falling in between those two sizes. You would think I would have leftovers from T but G just isnt growing as fast as T did. And as for C, well my only summer baby is throwing off the advantage of leftovers and he needs a closed toe pair of shoes to ride us through fall/winter!) and then we would feel out our tired meters if we could pull of babiesrus for new cups for C. They held on strong and were very good considering we don't do this as often as we could or did before last July. But the mini naps on the way home bit me in the ass. We arrived home by 6:00pm and they were sent to bed about an hour ago and I can still hear them whispering and moving around. By the time dinner hit the table the glories of steroids kicked in for G-the appetite and crabbies. He has been whining about anything and everything since then. He even fell as he tried to ride Bryley and bumped his port (fell right onto his chest and stomach). He is completely fine, no injuries or swelling/redness. He is more pissed off at Bry for moving out from under him, a strategy I warned him many a times would happen if he kept sit up. If she is not in the mood you better be prepared for her to dismiss you.  Everything hurts more when you are tired anyway. Right now he is still whining for me to "please come back" while T is crying "let me love you forever because you know I can" bc he's bummed I told him he could not sleep in my bed. Caden is talking and screaming to himself about the latest 1 yr old gossip I guess.

It has been one of those nights. I pushed the envelope today but got crap done. When I will catch up on sleep or normal, more positive thoughts who knows. But the important things were---G was excited to show daddy his new shoes (so hard to buy for when I am trying to hunt down the lightest pair for him and not spend a fortune). Caden has his first pair of gym shoes to sport tomorrow. Sidenote-as we pulled up to Payless both T n G noticed the ad for Shake It Up licensed shoes. They just had to tell me that I am not too old for them and should get a pair. Ha, thanks! T made sure to question my loyalty to the show and then approved a pair for me to try on-"You ARE still a fan, right mom?" Yes, for you I am babe! And of course as we leave I realize I never made it down the aisle for myself. just like our visit to Target last week and I got everything everyone else needed but forgot all my necessities, including monthly gear. You can see where I put myself on the totem pole. And I even had flashbacks of my mother and us at payless and thought to myself "wow, she did this every year for how many years?" as I toddled around w T n C  one shoe after the other before making our final selection. Us moms work hard at the simplest of things! And T is all set for soccer season. We shall see if this is HIS sport.

Next week is a busy one. Tuesday is grandparents day at T's school and I have made arrangements for Lula to make an appearance if all my plans work out. Wednesday night is open house at his school  (and it's the first Awana Spark club meeting but we will miss out to attend the school event). Thursday night is his first soccer practice. Friday is T's picture day. And Saturday he has his first soccer game. I am holding on tight for the rest of September!

Wednesday, September 7, 2011

September clinic visit

As of today, we have been at this chemo thing for 1 year and 38 days. As elated as we are to visit once a month vs every Monday I still can't get used to it. Sometimes I crave those counts bc my mind is playing the worry games. Nothing tangible enough to put calls in to drs, just mommy doing her worry thang. Yes we have adapted to the new normal that Maintenance has brought us but the once a month visits creep up on me, tapping me on the shoulder like an old hag's crooked, crippled finger. It reminds me of the nasty journey we are on. In our case (and I am blessed to be able to say this) the past few months have been full of a high energy G, being the fun-loving 2.5 yr old he should be. So, we go weeks with no cancer drama (blessing again) and then boom-chemo visit. As necessary as the reality check is, it brings you down, too. A feeling that seems to never end at times. Honestly,  everyday we are reminded of it (how could we not be when old habits of fever checks, skin coloring, lip checks, urine and stool monitoring, meds and food rules) but still. It is not that during those "off " weeks we are trying our best to forget what is in our face daily. It is just a rude reminder of the life we lead.

I know I sound blah and that is bc I am. These past few weeks I have busted my ass off to get in school/ work gear and now I am running out of steam. I am more than thrilled with how smooth things are at work-it is a huge relief that I have not felt in too many years to count. So, it is not that. I am just exhausted ALL the time. I am not even excited for my bday and anniversary next week. I want to blink right past it all. It is not like big plans can even take place anyway. It is what it is. And staying positive (which is forever our intention) can get tiring. It's like being part of this masquerade at times. You want to have a good time, party and let go. and yet your mind is always elsewhere. On the worry side of life bc you just cannot turn it off.

I know my recent mood probably had alot to do with my anxieties last night. I had this nauseating feeling that stayed with me even as I went about our morning school/work routine this am. It didnt help that I barely slept bc of Caden's cold/teething/whatever it is. I was dreading chemo. Dreading the physical run around, emotional,  and secretary/nursse/mama drain it takes on me. I plain old was not in the mood. And why? I had nothing to worry about, no new developments to discuss or news they may spring on us. The only items on my report to bring to their attention in the past few weeks were how wild, crazy he's been (in a good way) thus leading to the accompanied falls, scrapes,etc. ; T's stomach bug last Friday, my allergy/head cold this weekend and to present, and Caden's signs of a cold as of yesterday; and I was curious what his weight was. So, again, no big worries and yet I was anxious all morning. G was in great spirits last night and was extra goofy and cuddly with me. Loved it. And then he just had worry to my morning coffee. He was difficult to wake. Everyone went about their usual and he didn't budge or much less cry and whine for me as soon as I creep out of bed. T left for school and he still slept (which later in the day he was not happy that he missed his goodbye ritual w T).  I HAD to wake him 20min before we left -just in time for potty, magic creme application on his port and spine and hugs bye bye to Caden. He was really quiet in the car. He never once asked for food and drink. This was against what we were going to try for this spinal day-a tiny smidgen of cheerios and juice before leaving to avoid low glucose levels and a lethargic guy after morphine and procedures. I decided not to bring up the food and take our chances (and avoid any two yr old tantrums that may come w my offering a bit. You know-kinda like that give em an inch and they SCREAM for a mile). We hit every light, traffic idiot and annoying song on the way to clinic. Fun times.

Once we arrived he wanted me to carry him. His legs were working just fine, but his mood called the shots. Now I really wanted to know his counts. Were we in store for a transfusion? Did we really need a REALLY REALLY long day ahead of us? I was getting crabbier by the minute. Not to mention my mind was mush. You know when you read something and then have to go back to remember what it is you read? Or when someone is talllking to you and all you hear is noise and you can't try hard enough to absorb what they are saying? Or when you very well know what your lesson plans are for the day and cannot recall one activity that should be set up before the kids return from music class? THAT has been my past few days in a nutshell.

I was so happy I had a millisecond of a genious thought and brought the Ipad w us. This perked him up. He was in a decent mood, just not his usual giddy self at clinic. Was his body brewing for one of the many viruses floating around our home? Counts said maybe. They are great counts but it was mentioned to me that when ANC is this high sometimes the body is in overdrive fighting off something. Doing it's job the way it should. ANC today was 6, 300 vs 1, 300 in August. GREAT! Hgb 10 vs 8 point something in Aug and platelets 394. Lovely! He did lose 8 oz in the past month tho but at least he remained above 24 pounds.

He fell asleep almost immediately after a bit of morphine was given. During that time he was given some glucose to help us a bit w wake up time later. His glucose level did come up low so they decided to hook him up. He was SO chill we skipped the Versed seeing he was already tired and practically napping in my arms during Ipad breaks. It seems like it takes less and less morphine w each spinal. Impressive. He woke when we were about to start the procedure. He cried a bit during, asking me if it was almost over and that it hurt, but nothing big. I know it prob sounds like I am downplaying it but really he was fine. He is so familiar with what goes on now that I think today he was simply matching the appropriate emotion to the task. And the crabbies didnt help much. It just took a few words of encouragement from Dr Dell and Magan to get him through it. Such a trooper! He seemed more hungry than anything else and eager for it to end so he could go back to sleep.

Afterwards the glucose kicked in and he was back to his chatterbox self. He had his plans. Potty, treasure chest for a "poke reward", a piece of gum (his new big boy thing and he finally has the hang of NOT swallowing it), Mcds, pickup more big boy meds at CVS and then finally home to get T from school. He was excited to get to come with me and go for a walk. I decided to bring the double stroller just in case the day got to him and he pooped out on me.

As hectic as the day was (and as worrisome as I grew) it all ended just fine. T had a good report from his teacher today ( a few moments of bad choice making amongst peers the past couple of weeks has added more stress to mommy's brain and patience and forced me to pull out the behavior management strategy checklists/rewards/consequences that I know all too well). The kids are in good moods (especially considering there is no train playing and tv thx to T), we finished up homework already and we are off to early bed soon. My lazy ass pulled off mac n cheese and green beans for dinner for the kids. I myself am in the mood for cereal (and maybe some chips once they pass out). I am glad the day ended well, that we got a walk in and it is near bed time (even more so since I started this post). Now all I look forward to is Friday night, a night of no plans. Just me and my bed. Proud of you today and everyday, G (as he's hopping from puzzles to running around chasing Caden pretending to scare him). Here's to another month behind us. Crossing fingers we don't see that place again til Oct 3rd!

Sunday, September 4, 2011

Moody mama

This post is more for mommy's therapeutic needs.

It has been such a frustrating week...and it lingered into my weekend. Our weekend. Best laid plans...well piss on them. As the work week neared Friday the PMSing began to set in and so did the annual seasonal allergies. I warned myself a week or more ago that Sept 1 was approaching and like clockwork in the past it hits me right on that date (how much of that is mental you think? even tho I tell myself I refuse to get them each year). I even prepped my body with some doses of prevention-more veggies, yogurt and initialized the Emergen-C a.m. ritual. But Thursday hit hard. With anything I tried it made no difference. It didn't even creep into allergies. It blasted right into dizzy headaches and sinus pressure. I had no idea if it was a hard hitting allergy episode or head cold or sinus infection (which I have never had before). Late Thursday evening I just told myself to be thankful there were no students scheduled for Friday, just meetings. I could get through that.

But then came midnight. Two deep, garbled coughs from the boys' room. I heard Triston get out of bed and head to the bathroom. I could tell from every little sound exactly what he was doing. He was standing in front of the toilet. Moved to the sink. Washed and dried off his hands. Then he came into my room, naked and whispering he had thrown up. I knew right away it had to be in his bed but I asked anyway. Stupid me.  I moved Grayson right away into our bed. T moved to the shower and there he curled into a ball, humming to himself how tired and gross he felt. I cleaned and sprayed and cleaned some more. I love the look of those damn beds but they are a pain in the ass to change sheeets. Because before I knew it I was stripping G's bed too. That trundle is a space saver but another pain in the ass after midnite! And god forbid someone vomits and it gets into the wood grooves. SO much fun to clean ya know! I did not finish cleaning up that mess until 1:30 am.

By then laundry was in and T and I were on the couch. I hunted down our trusty puke bucket and lied next to him. I layed towels under him and along the couch ( a habit we are too familiar with thanks to chemo days back in August and September 2010). He just moaned and snored with interruptions every hour to puke. I knew by 4 am we would be approaching bile soon. With each vomit I was cleaning out the bucket and rearranging him. By the time I would finish and nestle myself back onto the couch we were onto another round. I had slept a total of 30 minutes all night. By 5 am I told Charito there was no way I was going to work. I wasn't even sure T was done and I sure as hell was not going to leave him and the other dramas with her to deal with alone. That would not be fair. I called MamaC and told her not to come. The last thing I wanted to do was infect her w something. I then texted my staff and let them know.

The rest of the day T was off and on. The puking subsided but he was exhausted. He would try and play for a bit and then end up on the couch. I enforced the BRAT diet and in small helpings he held stuff down. I avoided all dairy. It was not until this am (Sunday) that he finally got his first sip of milk. This was hard for him bc my boys love milk. But what boy is gonna turn down pepsi? By Saturday night he was returning to his old self. It is past.

So, yes that was all exhausting and frustrating (and heart breaking to watch as a mommy along with playing referee with keeping G n C away from T) but here comes the REALLY annoying part of it all. The worry part. Out came the masks again. OH, HOW I DID NOT MISS THEM! Been since February or so that we last donned them. Little buggers. As usual T had no prob wearing it. He totally understands its significance and I appreciate that about him. I even wore one to be on the safe side. AND then we had to cancel our plans for the weekend. I cannot tell you how NICE it felt to be able to tell people WE ACTUALLY had plans. I think people stop bother asking overall bc we don't do much of anything anymore. We may not have been off to some road trip destination but we were off to SOMEWHERE and that is all that matters. It is NOT home. Neal, Amy and Ayden were in a wedding this weekend and to make babysitting easier they booked us a room at the site of the reception. We could get away and they would have the ease of dropping off their kiddos anytime during the evening so the adults could party it up. I had to cancel. I thought about just going w G and C but at this point we were nervous for two reasons. 1. I did not want to bring some stomach virus to her kids, especially my Charley Horse-you know how easy them infants get dehydrated. 2. If this virus still existed in our home and G had the potential of getting it or fighting it off we didn't want to bring him somewhere else and add germs ontop of what may already be brewing inside of him. As nice as it is to go to clinic once a month I no longer have his counts each week. I have to go off of counts from almost a month ago and they were over a 1, 000 then. Nice counts but not like 3, 000 where his body is kicking germy ass. I hated calling Amy and telling here. There we  were figuring out the best plan while she is still playing matron of honor to the bride. Her list of duties was high, too and she had to come up w a backup plan. NOT TO MENTION the fact that almost EVERYTIME we try and get our kids together (or us adults for that matter) it fails. Someone is under the weather or schedules conflict. And it is even more difficult since school began. We reluctantly cancelled for the health of all involved all the while asking "WHY?". That is the point we get to be angry with cancer again. Just blame the cancer. A reminder of how limited we have to be for the right reasons.

So as you can tell with this post-it def put me in a mood. Yes, my period has a lot to do with it but so do other things. It's a little reminder of what the cold season will soon bring us. Back to hibernation. I know us 5 have learned to make the best of it when need be but it gets so tiring. Mundane. Even this morning as T is feeling better I thought of attempting Kohl Children museum but shouldn't bc of reasons stated above. We just shouldn't take our chances. It has been REALLY nice being out of the hospital since June. So we resort to ideas like bike rides, walks, restaurants we know not to be busy on certain days, being outdoors but not really being in contact with others or surfaces. And I know other cancer moms are reading this thinking sometimes we just have to give in. You weigh them choices. And I get that. And we have at times. And whose to say G (or C) will even get what T had. Let's just hope all my cleaning, lysol spraying, laundry and open windows pays off. As if I don't clean enough on a regular basis, I am forced into overdrive this weekend.

And I won't lie. I get so jealous.  Now let me preface this with saying and KNOWING that I am MORE than blessed to have my four here with me everyday and be where we are today at this point w all this cancer junk. So, don't think for once I don't recognize the positive side to our everyday chaos. G's face, and those other two slant-eyed, pino nose halfies I adore remind me each morning. And please remember this about me bc by now I am sure it is not necessary for me to write this each time I bitch. If you know me well, you know me. But, I get jealous. And I dont even know if jealous is the is the right word. You tell me. NOT that I don't want to hear about your great weekend or adventures. So please don't hesitate to tell me just bc of this paragraph. I am always thrilled to hear of the happy moments that fill the lives of the ones I love and care for whether it is in my personal, professional, friendly or cancer side of life. But later that evening after the day's events have soaked in and I'm reflecting, filing and putting things to rest I do get saddened. Sad for a life or event we just cannot have at this moment in time. We can't just pick up and go and do. The time will come but until then it presents me with mixed emotions. I question and fear as a parent more than I ever had in the my first 5 yrs of mommyhood . Even though Charito and I are trying our best to allow all 3 boys to experience as much as possible in these circumstances are we harming them? I know they are missing out but how much so? I get that that we are doing our best with what we have in our hands but still. When the physical side of this life doesn't exhaust me, the mental and emotional side pulls me under.

As my birthday, our wedding anniversary, and the dreaded cold/flu season approach I kinda get bummed. All weekend I found myself yanked toward Matt Hammitt's All of Me. A reminder of why I do what I do. I will recklessly love until I bleed. This cancer journey, G, T, C and Charito are worth all of me.
http://bowensheart.com/2010/09/15/the-morning-of-september-14th/

 I am pushed to do more for myself (something I admit I am horrible at. And believe me I had my own scare in August and did alot of praying then. I am fine but was scared enuf), and get creative as to what to do for my family to get through it all. And that takes energy that I don't always have in reserve sometimes. And when I use up that last ounce of the day I can honestly say I don't know where I scraped it up from. Mommy-ness I guess?

Time for Charito and I to step back and escape (even for 2 hours) for each other. I recall last year my mother telling me to go have a spa day, her bday gift to me. I yet to have cashed in that gift. I am MORE than looking forward to my fall break the first two weeks of October. My plans----use up that yoga groupon, spa time, and volunteer in Triston's class. Get Caden and Grayson to the gardens while T is in school. Pull T out for a day just for the two of us  (maybe the art institute) and then another for us 4 (that's the other element-kid friendly places we could visit while G's counts are good are so busy and germy over the weekends. Now w my being back to work when do we get to do those things? If and when they are at all possible. I plan to take advantage of that over fall break when the rest of Chicago is in school). But it is planning and thought like this that isn't easy. It's just not simple. But I guess it never was.

End rant. The sun is starting to shine all over the backyard. It is my fav clothes wearing weather-jeans n a tee or shorts n a long sleeve. Time to think of what to do with these boys today and be able to say we made the best out of it (see, I am trying not to be ho hum blah blah. Just needed to get some almond joy coffee {found it KT!} in me, few tunes on the Iphone, Zyrtec-D and some writing therapy going first).

Saturday, September 3, 2011

FINALLY...Flashes of Hope

















The following pictures receive credit to the wonderful organization FLASHES OF HOPE-a non-profit organization that creates uplifting portraits of children fighting cancer and other life-threatening illnesses and rasises money for pediatric cancer research.
We were invited to attend a session with them in April (Grayson was 2.5 yrs old, Triston 5 1/4 and Caden 9 mos). FREE OF CHARGE. It was quite the experience, unlike any other portrait studio I had ever visited. They entertained the boys while I was primped by a makeup stylist. It was another emotional kinda day. And I simply adore the photos. So happy Areum convinced me to do it.
Please do not copy. If you would like a copy please let me know.

Thursday, September 1, 2011

Update

We have been trucking along! We are still in Maintenance. We have not (knock on wood NOW) had a hospital stay since June 13th w the chicken pox. Grayson has been in GREAT spirits with HIGH, HIGH, HIGH energy! Cancer would not enter your mind if you saw this kid the past few months. Another blessing to tack up there. The energy level is so active that we are literally bumping into typical 2.5 yr old injuries-the scrapes and bumps bc he thinks he is some type of super entity (which let's face it, he kinda is). We monitor them all, ice them all and luckily have not had to call in for any so far. Even better-no bloody noses or overbleeding with any injuries. Counts have been great. His last aptmt on August 10th he weighed in at over 24 pounds! Kwon was pleased!
We go back in next Wednesday. He is due for a another round of steroids for the remainder of that week, a spinal tap and injection, vincristine and counts. Let's hope he has gained more weight. I was finally able to pass on 12-18 mos shorts to Caden and get G into most of our 24 mos / 2T shorts. He has been able to wear 2T shirts for a while now. Some shorts we still have to roll up the waist but its progress. Quite the milestone in my mommy head seeing as most of the summer I watched him wear exactly what he wore last summer. Was nice to pass it all on.

I will keep you posted after Wednesday!

Steroids get outta my way!





The kid loves him some croutons! He

was helping me unload groceries and he discovered these. All of a sudden I heard a shrieky rant, "Mommy! You buy these?! For me?! Oh my gosh! Thank you, thank you!"

Wierdo!

Oh that almost hairless head!




This had to have been back in February or March or April. Too cute. So wierd to be reminded of how much hair he did lose until I look at pics. He never went shiny bald but still lost all but a peach fuzz layer. And boy has it grown in so thick, shiny and soft. He is needing haircuts almost every 3 weeks! Love him! and look how close in size he is to Caden. Even now C is up to G's shoulders! Gotta get me some miracle gro!!

Sushi meet Sushi