Our own lil superhero!

Our own lil superhero!
Dick Grayson ain't got nothin' on the G-man. Our lil fighter since in utero-a young, fiesty fireball...never giving up! Just watch me!

Saturday, January 22, 2011

Surrounded by...

CORN DOGS!
We made it to the weekend. No vomit. Limited diet of corn dogs, milk and mozzarella cheese. Tomorrow I will search for THE noodles at Target, maybe I bought them there? But overall, I am pleased with his eating habits. At least he is eating and drinking. But with his choices comes constipation. I haven't whipped out the Miralax since October and boy did he need a dose yesterday and today. When I wiped there was a bit of blood and it did not appear to be in his stool. So, it is most likely from the straining he is doing. You should see him bear-down on something to push (the couch, fridge handle bars, me!). As long as the miralax does it's job we won't have to worry about internal bleeding, espec if platelets are low. Fingers crossed.

We also have been on watch for bloody noses (another one of those low platelets scares and humidity vs cold vs anemia vs his cold boogers making it worst). He got a good one out of the blue last nite ( I was off on my date w Triston and Charito texted me). I was willing to leave the movie if it didnt stop but it was under control pretty quickly. But once he has one we monitor him bc his cold boogers/runny nose can push out any clot that formed in his nose to stop the bleeding. Annoying! Luckily any bloody noses we have encountered have occurred within days of our next clinic visit. We don't have stress over a week's time, just a couple of days. And if a transfusion is necessary that is days within reach, too. We learned quickly that pressure to the bleeding nostril instead of the traditional pinch is best for him, as well as ice in more serious bleeds like the numerous times he busts his lips!

Side note-Charito just informed me (Boys and I just woke from naps) that he is headed out to pick up Bryley from the spa. Huh? Yeah, instead of just taking her in for a nail trim (weeks overdue bc we have def neglected her) it was worth the deal for nails and a bath, too. I had to chuckle, bc not only does our baby girl deserve it BUT WHEN is it my turn?!

Our weekend has been full of stress, emotions, lazies and food. This week in particular Charito and I are dealing with our stress and anger by eating-ALOT. We just ordered pizza and picked up movies for tonight. It is all we can do distract ourselves. As if the kids and their upside down moods are not enuf. Unfortunately we are awaiting some disturbing news of a close family member and it is eating away at us. I will share and vent the explosive emotions I am going through once I have more information to pass on. Just pray for us. A scary life atop scary news is never settling.

We are gonna eat and soak up some family time now. As much as I love it, our weekends are getting pretty monotonous. No adventures, no outings, neutropenia and cancer running our lives. Getting old but I know one day it will be better. I just wish I could hit the fast forward button sometimes!

1 comment:

  1. Just think, January is almost over. One more month closer to warmer weather and the end of it all. And, it is DEFINITELY YOUR TURN for the spa! Make yourself an appointment tomorrow! I have an awesome masseuse that I can recommend. You can always cancel if something comes up, but you should find an hour to escape and go. You deserve it more than anyone I know.

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