3rd batch (part 4)

Toys from the humor cart and a visit from student volunteers from a nearby therapeutic day school. So sweet.

The two pillow cases we made together. He chose santa for himself and planets for Triston.

Thursday

Grayson's 42 hour methotrexate draw was at 2.02 at 4 pm yesterday.

His 48 hour draw at 10 pm last night was 0.4

He just had another draw at 10 am w a dose of Leucovorin 30 min before to help that number along. Should get those numbers soon.

CBC results as of 4 am :

WBC 2.6

Hgb 10.5

Platelets 303

ANC 1,300

Methotrexate chemo did not slam him TOO much so far. With that Hgb count no need for transfusion. ANC count indicates he is not neutropenic (he is if it goes under 1, 000). Platelets are looking good meaning no concern for new bruises.

He has been sleeping really well this stay. On his first nap of the day right now, 10:30 am. Ate a whole mini box of cheerios for breakfast. His fluids got pushed to a rate of 90 (vs the usual 60) to quicken the elimination process. Between fluids and past transfusions his body has proven to be able to handle that rate of push thru his port so we use it when we can. We are close.

So far Triston has not thrown up since last nite and I hope it stays that way. Cannot wait to get home.

I'm gonna take a Dexter break right now while he is napping!

4pm

So nap did not last long bc we needed to reach urine output parameters so he slept for 20 before we had to wake him and get him walking to pee. He has not been peeing over night or during naps. He has not for weeks. Wouldn't be a prob at home, but here in the hospital when we are constantly monitoring organ functioning it is a prob. We dont care what he drinks as long as it is something atop the IV fluids. Oddly enough he doesn't like the typical 2 yr old drinks. He does not ask for pop often even tho we allow him to drink it in the hospital. He does not like chocolate milk or many juices of any kind. He is all about milk and for some reason he has made the connection that "milk" in the hospital is pediasure and he prefers that, even when I try to sneak whole milk in. If Leukemia wasn't in the picture and he was not already potty trained (T was before his 2 yr bday) this would be the best timing! He has been sitting on the toilet doing the motions since January. Telling us when wet and dirty since March or so. But, alas we will hold off til we know we are not in any stages of treatment that could compromise our success. I don't want him to get frustrated or regress in any way (me either).

While we were up we headed to the play room, visited the therapy dogs, received a visit from the humor cart (the same lady we shared the newspaper with-it was so nice to see her and share our post stories), sewed our own pillowcases and now Aerum is reading to him. It's a precious love/hate relationship I have w this place.

10 am draw was .18. Not quite there yet.

Drs ordered a 3 pm draw of his methotrexate level. Waiting on those results. Maybe go home tonight?

Either way, I hope it is an early bed time for the both of us. I have a pounding headache.

5:30pm

What am I thinking? We live on hospital time here. No way we are going home tonight. We have not received metho count yet.

6pm

He just fell asleep. I'm taking some tylenol and vegging out in front of dexter.