3rd batch (Part 2)

Breakfast time

Play and art

Lounging during quiet movie time

When we arrived at clinic Monday he was prepared for a spinal and CBC. Then if all is good we head to admissions. Obviously, our numbers are good bc here we are!

As of Monday, Dec 6:

Hgb 11.5

WBC 5, 180

platelets 320

ANC 2, 620

REALLY good numbers.

Too bad they were gonna get crushed by a 24 hour chemo treatment.

Our Monday looked like this:

9 am arrived to clinic

CBC report arrived by 9:45

Done with the spinal injection (intrathecal) of methotrexate by 11 am

Headed to the au bon pain bakery for To Go lunch and then to admissions

In our room by noon

Hydration prep of fluids began at 3 pm (lasting 6 hours)

By 9 pm his urinalysis reached the correct parameters to begin the methotrexate

(a record time for G!)

Began methotrexate (the neon green one) by 10 pm along w fluids thru his port (lasting 24 hours

By 10 pm Tuesday night we pulled the methotrexate and drew our first toxicity level (see above for that count). Another record for G-no hangups along that 24 hour route like last time. He also received his dose of Vincristine (push through his port).

He has been on fluids since and we are playing Musical IV fluids bags to keep his urine PH between 7-8. 9 is too high and 6 too low. Thus effecting the kidneys and spleen.

Today is Wednesday and he has not had a CBC since Monday but his first toxicity level draw of the day was 85. Anything under 150 at the first draw (24 hours since methotrexate started) is good. Now we wait for that number to fall below 1.

He is in a good mood with a few tantrum bouts today. It seems today he has been hitting a tired wall every 4-5 hours and takes a catnap. But today we went on a few walks, hit up the playroom and had a visit from the humor cart.

It actually has been a pleasant week so far. We just keep waiting on those numbers!

We have had one of our fav nurses Jenn and a new one, Jessica. We really like her! Someone I can talk Dexter talk with! I am catching up and finally reached season 3 last night. I am getting there. It is rather addcitive.

Mamac has been taking day duty with Triston and Caden before she heads to work.

Night duty-My Aunt Candy (AC) and Uncle Tim watched T and Caden Monday and Tuesday and T told me he had lots of fun. I am surprised she didn't kidnap Caden each night and take him home with her!

Today and tomorrow Lula Mel is on night duty, thanks to Papac being able to drop her at our place. I am worried about T. I just spoke to Tita Mel and he threw up afterschool, so instead of Charito visiting us tonight I told him to go home and monitor Triston. I hope he is ok. It is so hard when I am not there.

G had a decent appetite today-oranges, pears, strawberries and spaghetti. We are pushing the pediasure bc that seems to be helping with that ph balance, especially in the last few hours. It is now 8 pm and I am ready for bed. He is already in the zone, with a bit of sillies here and there.

Like this one....

Remember how we place cotton balls in his diaper to measure his urine output? Well, he found one under the blankets today and I heard, "OH MAN! Bryley make mess! Bryley! You fix it!" , in his typical dicator-like voice. I bust out laughing! I recall him at the age of one as we setup the Christmas tree. White cotton fluff fell out of one of the boxes and he insisted it was from Bryley's body! He really was concerned. I remember him repeating oh no and calling out to her. He followed her around trying to place it on her tail or anywhere she had white fur. It became a hopeless feat but hilarious nonetheless. Or was that Triston-again, brain mush but was def one of my guys. At least I can say I KNOW it wasn't Caden!