Blew by

That is what October felt like. I havent written since early October which was supposed to be our only visit to clinic but you know how that goes...impossible to predict what direction leukemia wants to go in each day.

Early October started out fine. But then by the second-third  week of Oct (immediately following his bday) G just didn't seem right. That Monday is was TOO chill for my liking and I rushed home from work to run him to clinic. A weekend of little things like diarrhea, little appetite, a lot of sleeping and minor whines here and there snowballed into a pile worthy enuf of worry. I knew I just would not function at work or sleep that evening if I did not have him checked out. Well, his ANC had plummeted to I believe the 200s or 400s and previously being in the 3, 000s ( I cannot recall at this moment. the info is upstairs and I am lucky enuf to be updating you at this late hour right before a big day tmro). It was confirmed that he was most likely fighting some type of virus and we went home with all chemo meds held til the following Monday. Two days later he was back to his old self. The good news is that all the while he was "off" according to mommy's standards he never developed a fever. Dr. Kwon even joked w G as we left by saying, "Hey, G!" G said huh? "Mommy is always right!" Gotta love that man's humor when you get bits and pieces of it like we do! Even made me feel confident in my decision and not like a crazy person instead!

Since then he has been great. Great appetite and energy and counts. ANC has been in the 2000s and 3000s since that low episode. Hgb holding strong at 8.6 and 9.2 here and there. Weight gain is steady. Asthma under control w no increases in med admin. But since we held chemo (our home meds) we now have to slowly build back up to 100% doses. So each Monday since we are going into clinic for counts and the regularly scheduled push drug (like Vincristine) and upping his meds. Last week he was at 50% and now this week he is at 75 %. We should be able to go in on Monday and bump up to 100% w no prob. Yeah we spent some time there on Halloween yesterday but it was in and out and a nice quiet stop before the hectic halloween dress him and him and him drama began.

Halloween was great! Just us 5 walking the hood and watching every bit of G getting to enjoy this year (last year he spent it in the hospital for his first non-chemo related hospital stay-that was a scary one). Here we were w Caden walking it and Grayson running it! And there was no slowing Triston down! Lots of smiles this year. I had my Batman, Robin and firefighter. Pics coming soon.

As for the rest of us October has kicked our asses. Triston has been super busy with classmate parties, Awana and the end of the soccer season. Caden had his 15 mos aptmt and actually gained a pound n a half! Points for the puney! All is well w that crazy one! Charito and I continue to struggle to keep the house somewhat manageable and laundry from attacking us each morning. I have been drowning myself in schoolwork (NOT by choice!). I have been up to my eyeballs in IEP report cards, preschool assessment reports and IEP meetings. And now to start off my November I have Parent-teacher conferences til 6 pm tomorrow. Can you feel the excitement in my type-written words?! It has been draining but I just keep tell myself (everyone knock on wood right NOW) that at least we have not had a hospital stay since June (damn varicella) and xmas is right around the corner. Right?While dealing w work and other worries I hit a wall and had to escape. I have attended a couple of yoga classes in the past week and it has paid off. Benefits are short -lived for now bc of the overwhelming amount of work and home crap but it is still worth the pick-me-up. One of the few things I have done for myself since this all began. My goal for November-more sleep and more time for me and the hubby. I have been passing out w the kids or in the wee hours of the night w barely any conversation had between the two of us other than what needs to be accomplished as parents for  the next day. A steak dinner ALONE is calling our names!